I have been struggling with my health for the past two weeks. I have chronic fatigue syndrome and fibromyalgia. They can rear their ugly heads at times. Sometimes I'm able to point to a specific activity or event that led to a flare, other times I don't know what caused it. Even when I know what may of caused it, I don't understand why it takes so long for me to get back on my feet sometimes. I went to an amusement park on Friday the 24th with my kids and husband. I had already been dealing with increased pain. I was undecided on to whether to go or not. I always have a hard time making decisions like that. I want to go to be with my family, but am not sure how much I'm going to pay for it afterwards. My son really wanted me to go. I knew if I stayed home I would feel depressed about not being with them. I ended up going and five days later am still effected by my choice. Should I of made a different choice? That's the thing about chronic illness. You don't always know what the best decision is. You just have to decide and hope it was the right one.
I hope everyone's summer is going well. Let me know some of the issues you deal with because of your illness. I am here to support you!!
5 comments:
I have chronic fatigue, fibromyalgia, etc. My main question is, what do you do for the pain flares?
I have chronic fatigue, fibromyalgia, degenerative disc disease, arthralgia, migraines, etc. I am curious to know what you do for your cf/fibro flares?
When I am in a flare I try to slow down as much as possible and do the bare minimum. I rest as much as possible. I also take a hot bath and try to get a massage if I can afford it. I usually take just advil and flexeril. It is a slow process, but for me these things help me to wait it out. I hope that helped Glenna.
i have ankylosing spondylitis and probably fibromyalgia as well. i encounter these choices all the time too. i try to pay attention to my body. it is oftrn worth it for me to go and spend time with my family and pay for it later, but when i do this i try to schedule some free days afterward. i have two kids, but i try to make sure we have no scheduled appts, playdates, or events so that i can rest between household tasks and things i need to do for the kids.
That's a good idea Jennifer. I'm always weighing whether or not something is worth being down for a few days or not. If it is then I will go ahead and do it. The only problem is sometimes my kids and husband get frusterated with me when I'm out of comission for a few days. It sometimes takes me a week to get back to where i was before.
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